207: Special Ed - This American Life
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00:00 00:00 Transcript Share This American Life Life Partners How to Listen Episodes Recommended About Overview Staff Announcements Fellowships Jobs Music Make Radio On The Road FAQ Submissions Merch Contact Us Our Other Shows Merch Follow Us Life Partners Subscribe to our newsletter Full episode Toggle Audio and Transcript Sync Transcript | Episode #207 | August 3, 2012 207: Special Ed Note: This American Life is produced for the ear and designed to be heard.
00:00 00:00 文字记录 分享此 美国生活 生活伙伴 如何收听 剧集 推荐 关于 概述 员工公告 奖学金 工作 音乐 在路上制作电台 常见问题解答 提交 商品 联系我们 我们的其他节目 商品 关注我们 生活伙伴 订阅我们的时事通讯 整集 切换音频和文字记录同步 文字记录 | 内容第 207 集 | 2012 年 8 月 3 日 207:特别编注:《This American Life》是为耳朵而制作的,旨在让人们听到。
If you are able, we strongly encourage you to listen to the audio, which includes emotion and emphasis that's not on the page.
如果可以的话,我们强烈建议您收听音频,其中包括页面上没有的情感和重点。
Transcripts are generated using a combination of speech recognition software and human transcribers, and may contain errors.
文字记录是使用语音识别软件和人工转录员结合生成的,可能包含错误。
Please check the corresponding audio before quoting in print.
请在印刷版引用前检查相应的音频。
Prologue Ira Glass Edward was just a little boy when he was switched from regular classes to special ed.
序言 艾拉·格拉斯·爱德华从普通班转到特殊教育班时还只是个小男孩。
It was kindergarten, and he viewed the move as a big step up.
那是在幼儿园,他认为此举是一个很大的进步。
I thought it was cool because when you think of the word special meaning special, you know, like good, a good thing?
我觉得这很酷,因为当你想到“特殊”这个词的意思是“特殊”,你知道,就像“好”,一件好事吗?
Yeah.
是的。
Edward And, with my name being Edward, I thought it was kind of built for me.
爱德华 而且,我的名字是爱德华,我认为它是为我建造的。
He was Ed.
他是艾德。
Of course he was going to special ed.
当然他要去特别教育。
And he didn't really figure out what special ed classes really meant for years, until one day in junior high school riding the school bus.
多年来,他一直没有真正弄清楚特殊教育课程的真正含义,直到初中的一天乘坐校车。
And one of my friends, who was younger than me, on the bus, asked me to help him with his homework.
我的一位比我年轻的朋友在公交车上让我帮他做作业。
And I noticed he had harder homework than we did.
我注意到他的作业比我们更难。
Why?
为什么?
What do you remember about his homework?
关于他的家庭作业,你还记得什么?
Because he was doing like, I think it was, timetables and division-type things.
因为我认为他正在做类似时间表和部门类型的事情。
And ours was addition and subtraction, still, and we were a couple of grades higher than he was.
我们的课程仍然是加法和减法,而且我们比他高了几个年级。
And the spelling words was like, they looked like high-schoolers would have a spelling word, kind of thing like, forbidden and probably some more words harder than that, kinda.
拼写单词就像,他们看起来像高中生会有一个拼写单词,类似“禁止”之类的东西,可能还有一些比这更难的单词,有点。
Like the word forbidden.
就像禁止这个词一样。
And what were you guys doing?
你们在做什么?
Cow, sheep, sleep.
牛,羊,睡觉吧。
It kind of got me mad.
这让我有点生气。
And I just kind of thought we were all regular.
我只是觉得我们都是正常人。
And then, that day, I saw kind of like a divider kind of thing.
然后,那天,我看到了一种类似分隔线的东西。
I would think that, that would be very hard.
我想,那会非常困难。
Well, yeah, because you kind of think of yourself as regular until these teachers and people of high authority are telling you you're not the same as everybody else.
嗯,是的,因为你认为自己是正常人,直到这些老师和高权威人士告诉你你和其他人不一样。
So you have to figure out OK, so why am I different?
所以你必须弄清楚,好吧,那为什么我与众不同?
A lot of kids in junior high school and high school feel different.
很多初中和高中的孩子感觉不一样。
But to be told no, it's not your imagination, you are different?
但被告知不,这不是你的想象,你与众不同?
This moment is something a lot of kids in special ed get to at some point or another: a shocking moment of understanding that they are not the same as other kids and that everybody else knew that long ago.
这一刻是许多特殊教育孩子在某个时刻都会经历的事情:一个令人震惊的时刻,他们了解到自己与其他孩子不一样,而且其他人很久以前就知道这一点。
They knew it when they didn't.
当他们不知道的时候他们就知道了。
We were doing a project in first grade.
我们一年级时正在做一个项目。
Putting a snowman-- actually, we had to put cut-out objects, like cut-out circles, and put it on there, and put stuff on it.
放一个雪人——实际上,我们必须放一些剪下来的物体,比如剪下来的圆圈,然后把它放在那里,然后在上面放一些东西。
Holly is a high school student in Chicago.
霍莉是芝加哥的一名高中生。
She's 18.
她18岁了。
And I was doing that.
我就是这么做的。
And I didn't cut one.
而且我一个也没剪。
And I accidentally unscrewed the top of the glue, and it spilled all over.
我不小心拧开了顶部的胶水,它洒了一地。
So I had to clean it up.
所以我必须把它清理干净。
And then she put me in the corner and yelled at me.
然后她把我放在角落里对我大喊大叫。
It was really embarrassing.
实在是太尴尬了。
Everybody was laughing.
每个人都在笑。
It was kind of hard.
这有点难。
So that's the [UNINTELLIGIBLE] I really remember.
这就是我真正记得的[难以理解]。
I guess she thought I was stupid in some way.
我猜她认为我在某种程度上很愚蠢。
I felt bad about myself at that point because I realized that I really was different from everybody else.
那时我对自己感觉很糟糕,因为我意识到我确实与其他人不同。
I was about, maybe, 14 when I was placed into a special ed class because my reading skills were real low.
当我被安排到特殊教育班时,我大概 14 岁,因为我的阅读能力非常低。
David is also a high school student here in Chicago.
大卫也是芝加哥的一名高中生。
He's also 18.
他也18岁了。
When I was placed into the special ed program, you know, I felt sad and lonely.
当我被安排进入特殊教育项目时,你知道,我感到悲伤和孤独。
For me, a man, like I was a slow person that had problems learning, like a mentally problems.
对我来说,一个男人,就像我是一个缓慢的人,有学习问题,比如精神问题。
Today on our program, stories of people who were told that they're different: some who were comfortable with that, some who did not understand it, some who understood it and did not like it.
今天在我们的节目中,讲述了人们被告知他们与众不同的故事:有些人对此感到满意,有些人不理解它,有些人理解它但不喜欢它。
We bring you stories of the developmentally disabled.
我们为您带来发育障碍人士的故事。
It is a very different kind of show for us with voices and stories that usually do not make it to the radio.
对于我们来说,这是一种非常不同的节目,其声音和故事通常不会出现在广播中。
From WBEZ Chicago, it's This American Life , distributed by Public Radio International.
来自芝加哥 WBEZ 的《This American Life》,由国际公共广播电台发行。
I'm Ira Glass.
我是艾拉·格拉斯。
Our show today in three acts.
我们今天的演出分三幕。
Act One, Get On The Mic.
第一幕,拿起麦克风。
In which we hear the story of what happens when you hand microphones to developmentally disabled people of various sorts and then send them out with camera crews to interview anyone they want on the streets of America.
在其中,我们听到了这样的故事:当你将麦克风交给各种发育障碍人士,然后派他们带着摄制组去美国街头采访他们想要采访的任何人时,会发生什么。
One thing that turns out to be on the minds of the disabled, same thing that's on your mind and mine, TV.
事实证明,残疾人脑子里想到的一件事,你我脑子里也想到的一件事,就是电视。
Act Two, Black Hole Son.
第二幕,黑洞之子。
In that story we hear from a mother and her son who, at three, became mesmerized with black holes and Stephen Hawking, an obsession which gave way to bunnies and flowers.
在那个故事中,我们听到了一位母亲和她的儿子的故事,他们在三岁时就迷上了黑洞和斯蒂芬·霍金,这种痴迷后来让位于兔子和鲜花。
Act Three, Walkout.
第三幕,罢工。
Veronica Chater tells the story of her own brother, Vincent, who one day quit his job at an assisted learning center, and then quit everything else, mystifying everybody in his life.
维罗妮卡·查特讲述了她自己的兄弟文森特的故事,有一天,文森特辞掉了辅助学习中心的工作,然后辞掉了其他一切,让他生活中的每个人都感到困惑。
Stay with us.
留在我们身边。
Act One, Get On The Mic.
第一幕,拿起麦克风。
Here's a typical moment from the film, How's Your News?
这是电影《你的新闻怎么样?》中的一个典型时刻。
The film is a documentary in which five developmentally disabled people travel across America in an RV interviewing people they meet along the way.
这部电影是一部纪录片,讲述了五名发育障碍人士乘坐房车穿越美国,采访他们沿途遇到的人的故事。
When they get to Texas, one of the reporters, Sue Harrington, is at a cattle auction talking to an auctioneer, an older guy wearing a cowboy hat.
当他们到达德克萨斯州时,其中一位记者苏·哈林顿正在一场牛拍卖会上与一位戴着牛仔帽的年长者交谈。
There's all sorts of talk about prices and cows.
关于价格和奶牛有各种各样的讨论。
And then Sue, apropos of absolutely nothing, comes out with this question.
然后苏毫无缘由地提出了这个问题。
Sir, have you lately read any good books or seen any good movies that you could recommend to us?
先生,您最近读过什么好书或看过什么好电影可以推荐给我们吗?
No, I ain't read any good books lately.
不,我最近没读什么好书。
I can't remember the name of the movie I saw the other day.
我不记得前几天看的电影的名字了。
I saw Message in a Bottle , and that was a dad gum good movie, I thought, kind of a tear-jerker.
我看了《瓶中信》,那是一部好电影,我想,有点催人泪下。
Oh, really?
哦真的吗?
Really?
真的吗?
It's a good one?
这是一件好事吗?
You know, that's the first good review I've heard for that one.
你知道,这是我听到的第一个好评。
Well, I'm kind of sentimental.
嗯,我是一个比较感性的人。
I cried in Old Yeller too.
我也在《老耶勒》里哭了。
Now, How's Your News?
现在,你的消息怎么样?
team has an uncanny knack for bringing the sentimental out of people they meet.
团队有一种不可思议的本领,能够激发他们遇到的人的情感。
Arthur Bradford, who led the How's Your News?
阿瑟·布拉德福德 (Arthur Bradford),《你的新闻怎么样?》的负责人
team across the country, he first got to know them in 1993 at a camp for disabled adults called Camp Jabberwocky.
他第一次认识他们是在 1993 年,在一个名为 Camp Jabberwocky 的残疾人营地。
He was a counselor there teaching a video class.
他是那里的一名辅导员,教授视频课程。
And as part of the class, he would take the campers out to do man-on-the-street interviews.
作为课程的一部分,他会带营员出去进行街头采访。
They did that for a few summers, and then decided that it might be exciting and fun to try to do their interviews on a two-week, cross-country trip, which became this movie.
他们这样做了几个夏天,然后决定尝试在为期两周的越野旅行中进行采访可能会令人兴奋和有趣,这就是这部电影。
Arthur says that, from the start, it's been interesting to see how people react to the disabled reporters.
阿瑟说,从一开始,观察人们对残疾记者的反应就很有趣。
What I've noticed is that, when someone with a disability approaches someone on the street, this is without a camera or anything, that person sort of settles into OK, I need to, I guess basically, talk down to this person.
我注意到,当一个残疾人在街上接近某人时,这是没有相机或任何东西的,那个人有点安定下来,我想基本上,我需要居高临下地与这个人交谈。
It's sort of like they're talking to a child, I would say.
我想说,这有点像他们在和一个孩子说话。
But what I like about when you give them a microphone and a camera is that, suddenly, the people take them a little more seriously.
但我喜欢的是,当你给他们一个麦克风和一个摄像头时,人们会突然更加认真地对待他们。
And I would say they, maybe, give them a little more respect.
我想说,也许他们会给予他们更多的尊重。
Hello.
你好。
My name is Ronnie.
我的名字是罗尼。
I'm from How's Your News?
我来自《你的新闻怎么样?》
.
。
What's your name, sir?
先生,你叫什么名字?
Tuldgrave.
塔德格雷夫。
Ron Simonsen What do you do, Curtie?
罗恩·西蒙森 你是做什么的,柯蒂?
I work for the post office.
我在邮局工作。
Ron Simonsen Yeah?
罗恩·西蒙森 是吗?
Tell us about the post office.
给我们讲讲邮局吧。
The post office is a good place to work.
邮局是一个工作的好地方。
Yeah?
是的?
Yeah, I get my mail there at the post office.
是的,我在邮局收到邮件。
I love getting mail.
我喜欢收到邮件。
Have you met any famous people?
你见过什么名人吗?
No. Ira Glass This reporter, Ron Simonsen, asks nearly everybody who he interviews if they've met any famous people, especially if they've met Chad Everett who used to star in Medical Center .
没有。艾拉·格拉斯 (Ira Glass) 这位记者罗恩·西蒙森 (Ron Simonsen) 几乎询问所有接受采访的人是否见过任何名人,特别是他们是否见过曾在《医疗中心》中担任主演的查德·埃弗雷特 (Chad Everett)。
Ron is a big Chad Everett fan and wears a homemade Chad Everett sweatshirt through parts of the film.
罗恩是查德·埃弗雷特 (Chad Everett) 的忠实粉丝,在电影中的某些部分他都穿着自制的查德·埃弗雷特 (Chad Everett) 运动衫。
Here's Ron interviewing a woman in Las Vegas.
这是罗恩在拉斯维加斯采访一位女士的照片。
I'm Ronnie Simonsen reporting from Las Vegas.
我是罗尼·西蒙森,在拉斯维加斯报道。
Today, I'm with a fabulous singer, Jennifer Holloway.
今天,我和一位出色的歌手詹妮弗·霍洛威在一起。
Tell me, Jennifer, how's it feel to be a singer?
告诉我,詹妮弗,成为一名歌手感觉如何?
Fabulous.
太棒了。
I enjoy it.
我很享受。
Ron Simonsen Have you met any famous people?
罗恩·西蒙森 你见过任何名人吗?
Have you met Chad Everett?
你见过查德·埃弗雷特吗?
Jennifer Holloway No, I have not.
詹妮弗·霍洛威 不,我没有。
You know who he is?
你知道他是谁吗?
Jennifer Holloway Yes.
詹妮弗·霍洛威 是的。
Yes, I do.
是的,我愿意。
Well, let's see it.
好吧,让我们看看吧。
Ron Simonsen All right.
罗恩·西蒙森 好的。
This is Chad Everett.
这是查德·埃弗雷特。
OK.
好的。
Ron Simonsen You've got class, lady.
罗恩·西蒙森 你已经上课了,女士。
My name is Chad Everett.
我叫查德·埃弗雷特。
You know, I was the star of Medical Center.
你知道,我是医疗中心的明星。
There are moments during How's Your News?
“你的新闻怎么样?”期间有一些时刻。
when things happen that, in another movie, might seem like they're mocking the people on camera.
当事情发生时,在另一部电影中,可能看起来他们在嘲笑镜头前的人。
But, in this context, they don't, partially because it's clear how well the filmmakers know the reporters and love them.
但是,在这种情况下,他们并没有这样做,部分原因是很明显电影制片人对记者有多了解并热爱他们。
They were counselors and campers together in the RV.
他们在房车里一起担任辅导员和露营者。
They've known each other for years, taking a road trip.
他们相识多年,一次公路旅行。
Two of the reporters, Sean and Bobby, have Down's Syndrome.
其中两名记者肖恩和鲍比患有唐氏综合症。
Larry has a condition called Spastic Cerebral Palsy.
拉里患有一种称为痉挛性脑瘫的疾病。
The two most talkative reporters, Ron, who has Cerebral Palsy, and Sue, who has a mental disability, came into a studio to talk about the film.
两位最健谈的记者,患有脑瘫的罗恩和患有精神障碍的苏,来到摄影棚谈论这部电影。
They brought along a guitarist, Chad Urmston, one of their counselors, to play some of the songs from the film.
他们带来了吉他手查德·厄姆斯顿(Chad Urmston),他是他们的顾问之一,来演奏电影中的一些歌曲。
I began by asking Ron what his thing for Chad Everett is all about.
我首先问罗恩他对查德·埃弗雷特的兴趣是什么。
It turns out Ron has been a fan ever since he was a kid, back when he was spending a lot of time in and out of hospitals, and Chad Everett was playing a doctor on TV.
事实证明,罗恩从小就一直是他的粉丝,当时他花了很多时间进出医院,查德·埃弗雷特在电视上扮演一名医生。
My mother and I wrote a letter to Chad Everett.
我和母亲给查德·埃弗雷特写了一封信。
My mother wrote a letter to him, and I dictated.
我母亲给他写了一封信,我口述了这封信。
And I named everything he'd been in, not just Medical Center, but everything: The Rousters, Hagen, every show that he was on.
我列出了他去过的所有地方,不仅仅是医疗中心,还有所有的东西:The Rousters、Hagen、他参加的每一场演出。
And he wrote me a note.
他给我写了一张便条。
He says life's not meant to be on reruns.
他说生活并不意味着重播。
He said, "God bless your life.
他说:“愿上帝保佑你的生活。
Watch The New Love Boat, Chad."
观看《新爱情之船》,查德。”
Watch The New Love Boat?
看《新爱情船》吗?
Is Chad Everett on The New Love Boat ?
查德·埃弗雷特在新爱情船上吗?
He was a guest star?
他是客串明星吗?
Ron Simonsen Yeah.
罗恩·西蒙森 是的。
Yeah.
是的。
You know, like I'm a guest star on your show?
你知道吗,就像我在你的节目中客串明星一样?
He was a guest star on that show.
他是该节目的客串明星。
I see.
我懂了。
Ron Simonsen Oh, yeah.
罗恩·西蒙森 噢,是的。
I want to tell them how we went to the set of General Hospital.
我想告诉他们我们是怎么去综合医院片场的。
Can I tell them that?
我可以告诉他们吗?
I went to the set of General Hospital .
我去了集总医院。
What was that like?
那是什么样子的?
Ron Simonsen Oh, that was exciting.
罗恩·西蒙森 哦,那太令人兴奋了。
Wasn't it, Arthur?
不是吗,亚瑟?
Want to get in here?
想进入这里吗?
Yeah.
是的。
That was very exciting.
那非常令人兴奋。
We went to the set of General Hospital when we were in Los Angeles.
我们在洛杉矶的时候去了综合医院的片场。
And I walked in that studio there, and the guy said, "What the hell are you doing here?" And I said I was a colleague of Monica Quartermaine's, I was a cardiac surgeon.
我走进那个工作室,那家伙说,“你到底在这里做什么?”我说我是莫妮卡·夸特梅因的同事,我是一名心脏外科医生。
Not really, but it's pretend I was a colleague of hers.
不是真的,但假装我是她的同事。
Right.
正确的。
Did he laugh?
他笑了吗?
Ron Simonsen He laughed.
罗恩·西蒙森笑了。
He laughed.
他笑了。
He thought that was funny.
他觉得这很有趣。
[LAUGHS] Ron Simonsen He thought that was really funny, hilarious, though.
[笑]罗恩·西蒙森(Ron Simonsen)他认为这真的很有趣,很搞笑。
Yeah.
是的。
Arthur Bradford There's something about, the whole way across the country and then going to General Hospital, when you travel with someone like Ron, who is so excited about certain things, something about his enthusiasm rubs off on everybody else.
亚瑟·布拉德福德(Arthur Bradford):当你和罗恩这样的人一起旅行时,他会穿越整个国家,然后去综合医院,他对某些事情非常兴奋,他的热情会感染到其他人。
So, for instance, going to General Hospital , the set of General Hospital by myself, I'm not sure I would be so excited.
所以比如说我一个人去综合医院,综合医院的一套,我不确定我会不会这么兴奋。
But, with Ron, the whole way there, as we got closer and closer to General Hospital , he started clapping his hands and rocking back and forth.
但是,和罗恩一起,一路上,当我们越来越接近综合医院时,他开始拍手并前后摇晃。
And you were just so excited about going to General Hospital.
你对去综合医院感到非常兴奋。
I was because I wanted to see Leslie Charleson.
我是因为我想见莱斯利·查尔斯森。
And we're going to go back there again, in California.
我们将再次回到那里,在加利福尼亚州。
Maybe I'll see her again, then.
也许那时我会再见到她。
Well, let's let Chad come in, and let's have you sing.
好吧,让查德进来,让你唱歌。
OK, guys.
好吧,伙计们。
Susan Harrington All right.
苏珊·哈林顿 好的。
Let's do it.
我们开始做吧。
Ron, and why don't you introduce this session?
罗恩,你为什么不介绍一下这次会议呢?
This is, today, we're singing my favorite state, California, and where we went to the set of-- to California-- all my celebrity friends.
今天,我们唱的是我最喜欢的州——加利福尼亚州,我们去了加利福尼亚州——我所有的名人朋友的拍摄地。
And I'm going to sing it now, for you, Ira.
现在我要为你唱这首歌,艾拉。
All right.
好的。
Ron Simonsen Ready?
罗恩·西蒙森准备好了吗?
One, two, three.
一二三。
[GUITAR MUSIC] Ron Simonsen And Susan Harrington [SINGING] You'll never, never know.
[吉他音乐]罗恩·西蒙森和苏珊·哈林顿[歌唱]你永远、永远不会知道。
You'll never, never know.
你永远、永远不会知道。
You'll never, never know what you have found.
你永远、永远不知道你发现了什么。
You'll never, never know.
你永远、永远不会知道。
You'll never, never know.
你永远、永远不会知道。
You'll never, never know what you have found.
你永远、永远不知道你发现了什么。
[SINGING] California.
[唱歌]加利福尼亚州。
Oh, California.
哦,加利福尼亚。
Oh, California, oh, here I come.
哦,加利福尼亚,哦,我来了。
I went to the set of General Hospital .
我去了集总医院。
I met Leslie, met Leslie Charleson.
我遇见了莱斯利,遇见了莱斯利·查尔斯森。
I got to hold her, her Daytime Emmy, her Daytime Emmy at General Hospital .
我必须拥抱她,她的日间艾美奖,她在综合医院的日间艾美奖。
[SINGING] California, California.
[歌唱] 加利福尼亚州,加利福尼亚州。
Oh, California, oh, here I go.
哦,加利福尼亚,哦,我来了。
California, California, oh, California oh, here I go.
加利福尼亚,加利福尼亚,哦,加利福尼亚哦,我来了。
Hi.
你好。
My name-- oh.
我的名字——哦。
Hi.
你好。
My-- oh.
我的——哦。
Hi.
你好。
My name is Susan Harrington.
我叫苏珊·哈灵顿。
Hi.
你好。
Hi, would you like to be interviewed?
你好,请问你愿意接受采访吗?
Hi, can I interview you for How's Your News?
你好,我可以采访你的新闻怎么样吗?
I've often been in the situation where I have to walk up to a stranger on the street with a microphone and a tape recorder, and I always get a little nervous.
我经常遇到这样的情况:我必须带着麦克风和录音机走到街上的陌生人面前,我总是感到有点紧张。
Do you get nervous?
你紧张吗?
Well, you can't do something like this and not have a little bit of nerves and butterflies in the stomach.
嗯,做这样的事你不可能不感到紧张和不安。
Come on!
快点!
Do you find that it's hard, sometimes, getting people to talk to you?
您是否发现有时很难让人们与您交谈?
Yes.
是的。
Sometimes it is hard because there are people who just will not talk to us.
有时这很困难,因为有些人就是不肯和我们说话。
They're like, no way.
他们就像,没办法。
When we were at the camp, I think we chose the reporters for How's Your News especially because they seemed to be especially undaunted about going up to strangers and talking to them.
当我们在营地时,我想我们选择了《你的新闻怎么样》的记者,特别是因为他们似乎特别无所畏惧地走向陌生人并与他们交谈。
In fact, if you were to see Sue in a crowd without a microphone, she just likes to go up to strangers and talk to them.
事实上,如果你在人群中看到苏没有戴麦克风,她只是喜欢走近陌生人并与他们交谈。
Like, a perfect example is, in the film, the [?
就像,一个完美的例子是,在电影中,[?
assembly ?], and I'm interviewing this Mr. John B.
大会?],我正在采访这位约翰·B.
Porterfield.
波特菲尔德。
And he was very difficult to talk to.
而且他很难说话。
I should say, that interview happens in an alley in, what looks like, the kind of sketchy part of town, and Sue is visibly a little nervous.
我应该说,那次采访发生在小镇的一条小巷里,看起来像是镇上那种简陋的地方,苏显然有点紧张。
Sir, good evening.
先生,晚上好。
Susan Harrington from How's Your News ?
《你的新闻怎么样?》中的苏珊·哈林顿
And we'd just like to ask you a few questions tonight.
今晚我们想问你几个问题。
OK.
好的。
Susan Harrington Sir, what is your name?
苏珊·哈灵顿 先生,您叫什么名字?
John B.
约翰·B.
Porterfield.
波特菲尔德。
I am a combat war hero, and I'm living on the streets like a dog.
我是一名战斗英雄,却像一条狗一样流落街头。
Are there times, Arthur, where you're looking through the camera at a moment like that, where you feel scared for them?
亚瑟,有没有这样的时刻,当你看着镜头时,你会为他们感到害怕?
Yeah.
是的。
There were a lot of times when I'm sitting there watching and I'm thinking that I don't want anything to go wrong.
很多时候,我坐在那里观看,我想我不想出现任何问题。
I feel very protective.
我感觉很有保护欲。
I was always worried about the explosion where someone would just be like, "What the hell are you doing here?
我总是担心爆炸,有人会说:“你到底在这里做什么?
I don't want to talk to this person." And so, in that particular interview, I was a little nervous.
我不想和这个人说话。”所以,在那次特别的采访中,我有点紧张。
What I'm asking you is, I'm from out of state, so is there anything you-- I mean, do you think there's anything we should see here that you've seen and you've liked?
我想问你的是,我来自外州,那么你有什么——我的意思是,你认为我们应该在这里看到什么你看过并且喜欢的东西吗?
I don't like this town.
我不喜欢这个小镇。
I'm going to tell you that right now.
我现在就告诉你。
I've been beat up.
我被打了
I've been-- ah, I just want to forget it.
我一直——啊,我只是想忘记它。
Arthur, there are a lot of moments in the film where it seems like the reporters are standing there, and they're not exactly sure what to say next or what to ask next.
亚瑟,电影中有很多时刻,记者们似乎站在那里,他们不确定接下来要说什么或要问什么。
Why not give them questions?
为什么不给他们问题呢?
Well, we tried that.
嗯,我们尝试过。
We tried making lists of questions for them to ask, and it just didn't work.
我们尝试列出问题清单供他们提出,但没有成功。
It was so clear that they were just asking questions that had been given to them that there wasn't really anything very interesting about it.
很明显,他们只是在问别人给他们的问题,实际上并没有什么非常有趣的事情。
In fact, it came off as a little bit wrong, you know?
事实上,它有点不对劲,你知道吗?
I think everyone always asks about are you worried about this coming across as exploitation?
我想每个人都会问你是否担心这会被视为剥削?
And, of course.
当然。
Of course I am.
我当然是。
And we all were, so we had to figure out what was and what wasn't appropriate.
我们都是如此,所以我们必须弄清楚什么是合适的,什么是不合适的。
And, ultimately, I really felt strongly that the questions needed to be coming from them.
最终,我强烈地感觉到这些问题应该由他们提出。
My name is Ronnie Simonsen.
我叫罗尼·西蒙森。
I'm from How Is Your News .
我来自《你的新闻怎么样》。
This is a guy, he's sitting on a truck.
这是一个人,他坐在一辆卡车上。
It's about halfway across the country.
大约跨越了半个国家。
Who's your favorite singer?
你最喜欢的歌手是谁?
Man I like Boston.
伙计,我喜欢波士顿。
What does it say?
它说什么?
Please Come to Boston?
请来波士顿吗?
Is that the name of the song?
这是歌名吗?
Huh?
啊?
Ron Simonsen Want me to sing it with you?
罗恩·西蒙森 要我和你一起唱吗?
No. I don't-- Ron Simonsen [SINGING] Please come to Boston in the springtime.
不,我不——罗恩·西蒙森(Ron Simonsen)[唱歌]请在春天来波士顿。
La, la--
啦啦——
So, Ron, you do such a nice job with this guy.
所以,罗恩,你和这个家伙相处得很好。
You know, it doesn't seem like he's all that interested in talking, and then you find stuff to talk to him about where it seems like he actually cares about it.
你知道,他似乎对谈话不太感兴趣,然后你就找一些东西和他谈论他似乎真正关心的事情。
Well, yeah, I had to do something to make him happy and to make me happy.
嗯,是的,我必须做点什么让他开心,也让我开心。
I couldn't just sit there and say, "Hey, sorry pal."
我不能只是坐在那里说:“嘿,对不起,朋友。”
Oh.
哦。
What can you do?
你能做什么?
What do you like to do?
你有什么喜欢做的事?
You must have some hobby you like to do.
你一定有一些你喜欢做的爱好。
Yeah?
是的?
What does it make you feel like when you ride a motorcycle?
当你骑摩托车时,你有什么感觉?
Does it make you feel like The Fonz?
它让你感觉像 The Fonz 吗?
Yeah, sort of.
是的,有点像。
Ron Simonsen Do you like The Fonz?
罗恩·西蒙森 你喜欢 The Fonz 吗?
Yeah, do you?
是啊,你呢?
Ron Simonsen Yeah.
罗恩·西蒙森 是的。
Want me to do an impersonation with The Fonz?
要我模仿 The Fonz 吗?
I could act it out with you, pretend we're driving a motorcycle.
我可以和你一起表演,假装我们正在驾驶一辆摩托车。
Not really, but just role-play.
不是真的,只是角色扮演。
I am The Fonz.
我是方兹。
I'm riding a motorcycle.
我骑着摩托车。
Want to ride a motorcycle with me?
想和我一起骑摩托车吗?
Yeah, might as well.
是啊,或许也可以。
Ron Simonsen Come on.
罗恩·西蒙森 加油。
Come.
来。
Vroom!
弗鲁姆!
Vroom!
弗鲁姆!
Vroom!
弗鲁姆!
Vroom!
弗鲁姆!
Vroom!
弗鲁姆!
You all bring out a really nice side of people.
你们都展现出了人们非常好的一面。
Well, yeah.
嗯,是的。
Yeah.
是的。
It all depends on the people.
这一切都取决于人。
Where are you from?
你从哪来?
Ron Simonsen New Hampshire.
罗恩·西蒙森,新罕布什尔州。
New Hampshire?
新罕布什尔?
Ron Simonsen Yeah.
罗恩·西蒙森 是的。
We're traveling across country.
我们正在全国各地旅行。
We're going to California.
我们要去加利福尼亚。
Oh.
哦。
You like doing that?
你喜欢这样做吗?
Ron Simonsen Sure.
罗恩·西蒙森 当然可以。
It's my biggest dream.
这是我最大的梦想。
What's your biggest dream?
你最大的梦想是什么?
I don't know.
我不知道。
Ron Simonsen You must have something.
罗恩·西蒙森 你一定有一些东西。
You can't have anything if you don't have anything, right?
如果你什么都没有,你就什么都没有,对吗?
Yeah.
是的。
I ain't never thought too much about it.
我从来没有想太多。
One of the facts of life for many disabled adults is that they don't get around that much.
对于许多残疾成年人来说,生活中的事实之一是他们不经常四处走动。
Many live in group homes.
许多人住在集体之家。
Most of their contact is with other disabled people.
他们的大部分接触是与其他残疾人。
They don't go around talking to able-bodied strangers.
他们不会到处和身体健全的陌生人说话。
For most of the How's Your News ?
对于大多数“你的新闻怎么样?”
team, this was going to be the first time traveling across the country.
团队,这将是第一次穿越这个国家。
This was their first time traveling without their families so far from home for so long.
这是他们第一次离开家这么远,没有家人陪伴。
And in the months since the film was finished and shown on television, the whole How's Your News?
自从电影完成并在电视上播出后的几个月里,整个《你的新闻怎么样?》
team has flown to Europe, and Canada, and around the United States when the film has been screened at film festivals.
当这部电影在电影节上放映时,团队已经飞往欧洲、加拿大和美国各地。
At those screenings, they bring a band.
在这些放映中,他们带来了一支乐队。
They perform their songs live, on stage, and it pretty much brings the house down.
他们在舞台上现场表演他们的歌曲,这几乎让全场沸腾。
People love them.
人们爱他们。
In interviews with Sue and Ron, I kept asking them what all of this was like, how their lives had changed.
在采访苏和罗恩时,我不断地问他们这一切是什么样的,他们的生活发生了怎样的改变。
I have to say, every time that I asked those, they were pretty nonchalant about it all, very low-key.
不得不说,每次我问他们的时候,他们都表现的很淡漠,很低调。
Here's Ron, for instance.
以罗恩为例。
Well, it's good.
嗯,很好。
It's very good, and I felt really honored and blessed.
这非常好,我感到非常荣幸和幸福。
In a separate interview with Arthur, I asked him about their reactions to these kinds of questions.
在对阿瑟的单独采访中,我询问了他他们对此类问题的反应。
Yeah.
是的。
It's funny because Ron, who is so celebrity obsessed, often gets asked how does it feel to be a celebrity now?
有趣的是,罗恩如此痴迷于名人,经常被问到现在成为名人感觉如何?
And he just brushes that question off.
他只是忽略了这个问题。
You know, they've lived their lives.
你知道,他们已经过着自己的生活了。
They're all 35, 40.
他们都是35岁、40岁。
I don't think that this process is going to actually radically change them.
我认为这个过程不会真正从根本上改变他们。
For some reason it seems like they just always expected that this would happen, that someone would pick them up and drive them across the country to make a movie.
出于某种原因,他们似乎总是期望这种情况会发生,有人会接他们并开车送他们穿越全国去拍电影。
Wow.
哇。
Arthur Bradford I don't know.
阿瑟·布拉德福德 我不知道。
That sounds weird.
听起来很奇怪。
But if you ask them, they're all kind of like, yeah, this is the way it was supposed to be.
但如果你问他们,他们都会说,是的,事情本来就应该这样。
And they took it all in stride.
他们泰然处之。
I think, as filmmakers and American TV viewers, we want there to be this big Olympic moment where they're just like, ta da!
我认为,作为电影制片人和美国电视观众,我们希望有一个重要的奥运会时刻,他们会说,哒哒!
I feel so great and my life is so changed.
我感觉很棒,我的生活发生了很大的变化。
And I do think that they had a wonderful time on this trip but, they didn't-- and I actually like it-- they didn't freak out and start weeping on camera or anything like that.
我确实认为他们在这次旅行中度过了一段美好的时光,但是,他们没有——而且我真的很喜欢——他们没有惊慌失措并开始在镜头前哭泣或类似的事情。
What you're making me realize is that my instinct in asking you, even this particular set of questions about this, is suddenly seeming very wrong.
你让我意识到,我问你的本能,甚至是关于这个问题的一系列特定问题,突然间显得非常错误。
Well, I just didn't want this to be one of those disability documentaries where the music starts soaring, and everybody without a disability feels so good because they have helped these people.
好吧,我只是不想让这成为一部音乐开始飙升的残疾纪录片,每个没有残疾的人都感觉很好,因为他们帮助了这些人。
By understanding them.
通过了解他们。
Arthur Bradford Right.
阿瑟·布拉德福德 对。
The final scene in the movie is we all go swimming at the beach in the Pacific Ocean, in Venice Beach in California.
电影的最后一幕是我们都去加利福尼亚州威尼斯海滩的太平洋海滩游泳。
And I do think there's a certain beauty to that.
我确实认为这有一定的美感。
And they were just kind of whooping it up.
他们只是在欢呼雀跃。
And, honestly, when we were swimming in that beach, we were all there.
而且,老实说,当我们在那个海滩游泳时,我们都在那里。
We had made it across the country.
我们已经跨越了整个国家。
We were exhausted, but there was a real feeling of accomplishment.
我们虽然很累,但确实有一种成就感。
The sun was setting, and I really felt this feeling of yes, we have done something here.
太阳正在落山,我真的感受到了这种感觉,是的,我们在这里做了一些事情。
We set out to do it.
我们着手去做。
We made it across the country.
我们做到了全国各地。
I have to say I have to stop you there because I feel like we're getting to that big moment that you tried to avoid in the film.
我不得不说我必须阻止你,因为我觉得我们正在经历你在电影中试图避免的重要时刻。
[LAUGHTER] Arthur Bradford Yeah, I know.
[笑声] 阿瑟·布拉德福德 是的,我知道。
I guess that's true.
我想那是真的。
Arthur Bradford, with Sue Harrington and Ron Simonsen from How's Your News?
亚瑟·布拉德福德 (Arthur Bradford) 与苏·哈林顿 (Sue Harrington) 和罗恩·西蒙森 (Ron Simonsen) 《你的新闻怎么样?》
The movie aired on Cinemax and at film festivals.
这部电影在 Cinemax 和电影节上播出。
You can order your own DVD of the film at howsyournews.com.
您可以在 howsyournews.com 订购您自己的电影 DVD。
One, two, three.
一二三。
[MUSIC - "THE GRAND CANYON" BY SUSAN HARRINGTON]
[音乐 - 苏珊·哈林顿的《大峡谷》]
[GUITAR MUSIC] Susan Harrington [SINGING] The Grand Canyon was carved by the Colorado River.
[吉他音乐] Susan Harrington [演唱] 大峡谷是由科罗拉多河雕刻而成。
I learned this in history class.
我在历史课上学到了这一点。
This is really an amazing thing because we are about to dig some history of our own as we have arrived at one of the seven wonders of the world.
这确实是一件令人惊奇的事情,因为当我们到达世界七大奇迹之一时,我们即将挖掘一些我们自己的历史。
Beautiful.
美丽的。
Beautiful.
美丽的。
Beautiful.
美丽的。
Beautiful.
美丽的。
Beautiful.
美丽的。
Beautiful.
美丽的。
Take me there.
带我去那里。
How grand is this canyon?
这座峡谷到底有多大?
So deep and so wide.
那么深又那么宽。
How grand is this canyon?
这座峡谷到底有多大?
So deep and so wide.
那么深又那么宽。
How grand is this canyon?
这座峡谷到底有多大?
Coming up, yet another three-year-old fan of physicist, Stephen Hawking.
即将登场的是物理学家史蒂芬·霍金的另一位三岁粉丝。
And Vinny drops out: assembly line not required.
文尼退出了:不需要装配线。
That's in a minute from Chicago Public Radio and Public Radio International when our program continues.
一分钟后,芝加哥公共广播电台和国际公共广播电台将继续我们的节目。
With This American Life , I'm Ira Glass.
在《美国生活》中,我是艾拉·格拉斯。
Each week on our program, of course, we choose some theme, bring you a variety of different kinds of stories on that topic.
当然,每周我们的节目都会选择一些主题,为您带来有关该主题的各种不同类型的故事。
Today's program, Special Ed, stories of developmentally disabled people.
今天的节目,特别版,是发育障碍人士的故事。
We have arrived at Act Two of our show.
我们已经到了节目的第二幕了。
Act Two: Black Hole Son.
第二幕:黑洞之子。
Because of a very rare genetic disease, Sam was born with holes in several vital organs, including his heart and his brain.
由于患有一种非常罕见的遗传病,萨姆出生时多个重要器官都有洞,包括心脏和大脑。
For his first five years, if one wasn't making his life hell, the other was.
在他的头五年里,如果其中一个没有让他的生活变得一团糟,那么另一个则是。
He's seven now.
他现在七岁了。
And recently his mom and he sat down together to talk about how things used to be and how they got much, much better.
最近,他的妈妈和他坐在一起谈论事情过去的样子以及它们是如何变得更好的。
All right.
好的。
Sam's Mother Can you describe yourself?
山姆的妈妈 你能描述一下你自己吗?
What kind of a person are you?
你是一个什么样的人?
I'm nice and kindful person.
我是一个善良又善良的人。
Sam's Mother You're kindful?
山姆的妈妈 你好心吗?
Yes, and playful.
是的,而且好玩。
Sam's Mother What do you do that's nice?
山姆的妈妈 你做了什么好事?
Hug you.
拥抱你。
Sam's Mother When I was pregnant with Sam, the first ultrasound came back that there was something wrong.
Sam 的母亲 当我怀 Sam 时,第一次超声波检查显示有问题。
I was thinking just please, let it be something with his body not with his brain.
我在想,拜托,让它成为他的身体而不是他的大脑的东西。
I can handle his body, but I'll be a bad mom to a retarded child.
我可以处理他的身体,但对于一个弱智孩子来说,我会是一个坏妈妈。
Everybody has their thing they can't take, and that's it for me.
每个人都有自己无法承受的东西,对我来说就是这样。
So when Sam was born, when he was five days old, he had heart failure.
因此,当萨姆出生五天时,他就出现了心力衰竭。
So then we learned about the deletion in the chromosome, velo-cardio-facial syndrome.
然后我们了解到染色体缺失,即velo-cardio-facial 综合征。
So we didn't know if he was going to make it.
所以我们不知道他是否能成功。
And we had a talk with the geneticist.
我们与遗传学家进行了交谈。
And he said if you give him the operations, it's not sure he'll pull through.
他说,如果你给他做手术,不确定他能否渡过难关。
But if he does, he's going to be retarded, probably.
但如果他这样做了,他可能会变得迟钝。
And I said OK.
我说好的。
I don't care anymore.
我不在乎了。
I want him, and I need him.
我想要他,我需要他。
What were you like when you were three years old?
你三岁的时候是什么样的?
Do you want to talk about what you used to be like?
你想谈谈你以前的样子吗?
No way.
决不。
Sam's Mother He started torturing animals when he was three, and talking all the time about wanting to die.
山姆的母亲 他三岁时就开始虐待动物,并且一直说想死。
And he stabbed his stepfather with a plastic knife and drew blood, and poured boiling water on me, wiped things on the bus that should not be wiped.
还用塑料刀刺伤继父,流血,还往我身上泼开水,擦公交车上不该擦的东西。
He was kicked out of school when he was four because they said he was a danger to himself and others.
他四岁时被学校开除,因为他们说他对自己和他人构成危险。
And so we took him to a psych unit, and he was studied for a few days.
所以我们带他去了心理科室,对他进行了几天的研究。
And that's when they told us about the bipolar, rapid-cycling bipolar, which is common in velo-cardio-facial syndrome.
就在那时,他们告诉我们双相、快速循环双相,这在静脉-心脏-面部综合征中很常见。
It has early-onset, and it hits you hard a lot of the time.
它发病较早,很多时候都会给你带来沉重打击。
And sometimes it doesn't, but it did in him.
有时并非如此,但他却做到了。
But nobody told me that.
但没有人告诉我这一点。
I want to show you a drawing that you did.
我想给你看一张你画的画。
That's me with heart faces and heart eyes.
这就是我,有着心形的面孔和心形的眼睛。
There's about 100 hearts in your face in this drawing.
在这幅画中,你的脸上大约有 100 颗心。
Yeah.
是的。
Sam's Mother Green hearts, how come?
山姆的妈妈心里青了,怎么会这样?
What were you feeling when you drew this?
当你画这个的时候,你有什么感受?
I was feeling like hugging you and kissing you and giving you cards.
我想拥抱你、亲吻你、给你卡片。
All your drawings now have a lot of hearts and flowers and birds, and people are smiling.
现在你所有的画都有很多心形和花鸟,而且人们都在微笑。
Do you remember, when you were about four years old, do you remember what you drew all the time?
你还记得,当你四岁左右的时候,你还记得你一直画的是什么吗?
Yeah.
是的。
Sam's Mother Do you know what you were feeling when you were drawing black holes every day?
山姆的妈妈 你知道每天画黑洞时你的感受是什么吗?
Like, the black hole was going to suck the whole world up and make everybody die and end of the world.
就像,黑洞会把整个世界吸进去,让每个人都死掉,世界末日。
Yeah.
是的。
Did you feel like that a lot, like everybody was going to die?
你是否经常有这样的感觉,好像每个人都会死?
Yeah.
是的。
Sam's Mother I think the first time Sam heard of a black hole, he was almost four.
山姆的母亲 我想山姆第一次听说黑洞是在他快四岁的时候。
And we were watching Stephen Hawking, a show.
我们正在观看斯蒂芬·霍金的表演。
At that time, he couldn't sit down for anything.
那个时候,他什么也坐不下来。
He couldn't sit down for a 15-minute cartoon.
他无法坐下来观看 15 分钟的动画片。
But he was really into space.
但他真的很喜欢太空。
And this was the only time he sat down and he watched the boring show from start to finish.
而这也是他唯一一次坐下来,将这无聊的节目从头到尾看完。
They had, I think it was like a '50s cartoon of a black hole on just for a second, you know, one of those swirly things.
他们有,我认为这就像 50 年代的卡通片,黑洞只出现了一秒钟,你知道,那些漩涡状的东西之一。
That just captivated him.
那只是让他着迷。
He started drawing it all the time.
他开始一直画它。
In every family portrait, it'd be us and the black hole.
在每张全家福中,都是我们和黑洞。
At school, they had this rainbow bear notebook and it would have all the kids' drawings in there.
在学校,他们有这个彩虹熊笔记本,里面有孩子们所有的图画。
And there would be, like, 19 drawings of kids going sledding, kids going to McDonald's, kids playing with their siblings or something.
会有 19 张图画,比如孩子们去滑雪橇、孩子们去麦当劳、孩子们和他们的兄弟姐妹一起玩耍等等。
And then, on Sam's page, it would be a black hole destroying the universe or a black hole coming down the railroad tracks sucking up humans.
然后,在山姆的页面上,这将是一个毁灭宇宙的黑洞,或者是一个沿着铁轨下降并吸走人类的黑洞。
I was kind of proud of his differentness and his imagination, but, at the same time, I knew that it was like this horror to him.
我为他的与众不同和想象力感到自豪,但与此同时,我知道这对他来说就像是一种恐惧。
The moon, blowing moon.
明月,风吹月。
Sam's Mother The moon blows on you?
山姆的妈妈 月亮吹在你身上吗?
I think of bad thoughts that time.
我当时就想到了不好的想法。
I mean, bad thoughts.
我的意思是,不好的想法。
You had bad thoughts and that's why the moon blew on you?
你有不好的念头,所以月亮才吹到你身上?
Yeah.
是的。
Sam's Mother Did the moon know you had bad thoughts?
山姆的母亲 月亮知道你有不好的想法吗?
Yeah.
是的。
Sam's Mother What would happen when the moon blew on you?
山姆的妈妈 当月亮吹到你身上会发生什么?
And you had that nightmare a lot, I think.
我想你经常做这样的噩梦。
Two times.
两次。
Sam's Mother No. Like a whole year you had that nightmare.
山姆的母亲 不。你好像整整一年都在做那个噩梦。
Before he discovered black holes, it was any swirling thing that sucks you in.
在他发现黑洞之前,任何旋转的东西都会把你吸进去。
Like, even when he was months old, if he saw a ceiling fan, it was the only time he would quiet.
就像,即使在他几个月大的时候,如果他看到吊扇,那也是他唯一能安静下来的时候。
He would just stare at that ceiling fan.
他只会盯着那个吊扇。
I know a lot of babies do, but he just was obsessed.
我知道很多婴儿都这样做,但他只是着迷。
And then, when he was three, he had an imaginary friend, but it wasn't a boy, it was a fan.
然后,当他三岁时,他有了一个想象中的朋友,但那不是一个男孩,而是一个粉丝。
But this one was called bad, bad fan.
但这一位被称为“坏粉丝”。
And its blades were teeth.
它的刀片是牙齿。
And then it had these little, tiny eyes and these little, tiny feet at the bottom, and it would kill people.
然后它有这些小眼睛和底部的小脚,它会杀死人。
It would just blow on people and that would kill them because his breath was filled with teeth.
它只会吹到人身上,就会杀死他们,因为他的呼吸里充满了牙齿。
And then, sometimes when he broke things, he said bad, bad fan did it.
然后,有时当他弄坏东西时,他会说不好,是坏粉丝干的。
And it was kind of creepy, you know?
这有点令人毛骨悚然,你知道吗?
It was just me and him living in the house.
房子里只有我和他住。
And you start thinking-- oh.
然后你开始思考——哦。
He had to destroy all day long.
他不得不整天破坏。
He had to.
他必须这么做。
He couldn't not.
他不能不。
He destroyed his favorite toys.
他毁掉了他最喜欢的玩具。
He destroyed my favorite furniture, anything that meant anything, especially.
他毁掉了我最喜欢的家具,尤其是任何有意义的东西。
And I used to watch The Sally Jessy Raphael Shows, or whoever it was that had all those shows about the out-of-control-- I think it was Montel-- had all the shows about the out-of-control, really young children.
我曾经看过《莎莉·杰西·拉斐尔秀》,或者不管是谁,所有那些关于失控的节目——我认为是蒙特尔——所有关于失控的、真正的小孩子的节目。
And the parents had to lock the door against them at night.
晚上父母还得锁门。
And they lived in fear.
他们生活在恐惧之中。
And, supposedly, nobody could help.
而且,据说没有人能提供帮助。
And I would always think well, you must be really bad parents.
我总是想,你们一定是非常糟糕的父母。
I would never have a problem with controlling my kid.
我永远不会在控制我的孩子方面遇到问题。
I would teach them how to act.
我会教他们如何行动。
And if I had your kid for a week, he'd shape up.
如果我有了你的孩子一个星期,他就会好起来。
And so, of course, once I became afraid of my child, I didn't tell anyone because I thought they would think the same thing about me.
当然,一旦我开始害怕我的孩子,我就不会告诉任何人,因为我认为他们也会对我有同样的想法。
And I kind of thought the same thing about me.
我也有同样的想法。
You know, he'd be nice and normal, and then just do something so horrible and senseless.
你知道,他会表现得很友善、很正常,然后就会做出一些如此可怕和愚蠢的事情。
And it seemed like that to Sam too.
对山姆来说也是如此。
He could never understand.
他永远无法理解。
He'd do something like try to break the cat's leg, something like that.
他会做一些事情,比如试图打断猫的腿之类的事情。
And then, immediately afterwards, he'd be crying and saying, "I don't know why I did that." And he would be just as angry and sad as I was.
然后,紧接着,他就会哭着说:“我不知道我为什么这么做。”他会和我一样愤怒和悲伤。
And he'd say, "I don't understand." And he'd start punching himself and biting himself and putting bruises all over his body.
他会说:“我不明白。”他会开始打自己、咬自己,把自己弄得遍体鳞伤。
Ugh!
啊!
Oh, that was a horrible life.
哦,那是一种可怕的生活。
Do you know why you take the pills every day?
你知道为什么每天都要吃药吗?
What is that?
那是什么?
Nobody can see on the recorder.
没有人可以看到录音机上的内容。
Describe it.
描述一下。
It's so wild.
太狂野了。
And has to-- it's pumping blood all wild.
而且必须——它正在疯狂地泵血。
He started on a drug called Zyprexa.
他开始服用一种名为再普乐(Zyprexa)的药物。
And within 24 hours we noticed a change.
24 小时内我们注意到了变化。
And then, after about 56 hours, it was like night and day.
然后,大约 56 小时后,一切就像白天和黑夜一样。
This was not the same kid at all.
这根本不是同一个孩子。
It's hard to believe that we were all living like we were.
很难相信我们都像以前一样生活。
I mean, I can't believe it.
我的意思是,我简直不敢相信。
When I sit here and talk about it, I can't believe that that existed and I didn't try to get a diagnosis earlier.
当我坐在这里谈论它时,我不敢相信这种情况的存在,而且我没有尝试尽早得到诊断。
I just kept on thinking I could not be such a bad parent and it would get cured.
我只是一直认为我不能成为一个如此糟糕的父母,而且这种情况会得到治愈。
Or, I don't know what I thought.
或者说,我不知道自己是怎么想的。
But, within two days after starting on the Zyprexa, we would go out.
但是,在开始使用 Zyprexa 后两天内,我们就会出去。
We could go to do three errands in one day.
我们一天可以做三件事。
He could wait in line.
他可以排队等候。
He was doing well in school.
他在学校表现很好。
I mean, it didn't happen overnight because he still at some bad memories, but he started to get some nice memories to put on top of the bad ones.
我的意思是,这不是一夜之间发生的,因为他仍然有一些不好的记忆,但他开始把一些美好的记忆放在不好的记忆之上。
And he just got nicer and nicer, and happier and sweeter.
他变得越来越好,越来越快乐,越来越甜蜜。
He stopped having nightmares.
他不再做噩梦了。
At first, he would ask me when his brain was going to be messed up again, but now he feels like it's his brain, you know?
起初,他会问我他的大脑什么时候会再次混乱,但现在他觉得这是他的大脑,你知道吗?
He feels like he's in control of his own brain.
他感觉自己的大脑在掌控之中。
Do you have any girlfriends?
你有女朋友吗?
Sam Yeah, only one.
萨姆 是的,只有一个。
Who is it?
是谁?
Rose.
玫瑰。
Aw.
噢。
Tell me about Rose.
告诉我关于罗斯的事。
Sam She's kind and cute.
山姆 她善良又可爱。
[LAUGHS] Sam She looks kind of like her mom, maybe.
[笑] Sam 也许她看起来有点像她妈妈。
Yeah!
是的!
I would like to be.
我想成为。
Sam's Mother What is marrying like?
山姆的母亲 结婚是什么样的?
You have a bride.
你有新娘了。
And you are giving them flowers and heart and Valentines stuff.
你给他们鲜花、爱心和情人节礼物。
When I was doing these interviews with him, I realized something about him that I hadn't seen before, which is all those hearts and bunnies and rainbows that he talks about all the time, it's not because he's silly.
当我对他进行这些采访时,我意识到他身上有一些我以前从未见过的东西,那就是他一直谈论的那些心、兔子和彩虹,这并不是因为他很傻。
It's because he's been through more pain and powerlessness than most people ever will in their whole life.
这是因为他比大多数人一生中经历过更多的痛苦和无力。
And I think he took all that information about life, about what it is, what it means for him to be alive, and he made an informed decision that he's going to be happy with the good parts of life and he's going to spread them around.
我认为他掌握了所有关于生活的信息,关于生活是什么,对他来说活着意味着什么,他做出了一个明智的决定,他将对生活中美好的部分感到满意,并将它们传播出去。
And I think he knows something about hearts and bunnies and rainbows.
我认为他对红心、兔子和彩虹有所了解。
He's not like Forrest Gump, you know?
他不像阿甘,你知道吗?
It's not like-- you know, he came out of something very hard, and he has a very strong will.
这并不像——你知道,他是从非常艰难的事情中走出来的,而且他有非常坚强的意志。
[UNINTELLIGIBLE] boy?
[无法理解]男孩?
Sam's Mother Sure.
山姆的母亲 当然。
No. That'd scare people out.
不,那会把人吓跑的。
Sam's Mother That would scare people listening?
山姆的妈妈 这会吓到听的人吗?
Yeah.
是的。
Sam's Mother Let's make up a story about a human boy.
山姆的母亲 让我们编一个关于人类男孩的故事。
What would he do in the day?
白天他会做什么?
He would just have fits.
他只会发脾气。
And then he would [UNINTELLIGIBLE] his bowl, and then he would spill it, like that.
然后他会[难以理解]他的碗,然后他会把它洒出来,就像那样。
Push his bowl of food away and spill it?
推开他的碗,然后把食物洒出来?
Break the bowl.
打破碗。
And his mom will say, "You have to clean it up.
他妈妈会说:“你必须把它清理干净。
And, after that, you will have to go right up to your room."
然后,你就得直接回你的房间了。”
That he wants to be a nice boy.
他想成为一个好孩子。
Then when he came back downstairs, he hugged everyone in the world.
然后当他回到楼下时,他拥抱了世界上的每一个人。
The end.
结束。
Wow.
哇。
That bad boy turned out to be a good boy.
原来那个坏孩子变成了好孩子。
Do you know anyone like that?
你认识这样的人吗?
No. It's fake.
不,这是假的。
Ira Glass The mother who put that story together asked that we not broadcast her and her son's name.
艾拉·格拉斯 (Ira Glass) 将这个故事放在一起的母亲要求我们不要广播她和她儿子的名字。
[MUSIC - "KEEP THE SUNNY SIDE" BY THE WHITES]
[音乐 - 白人的“保持阳光明媚的一面”]
Act Three, Walkout.
第三幕,罢工。
Sun Kim has taught severely autistic children for the past five years.
Sun Kim 在过去的五年里一直在教导严重自闭症儿童。
She says autistic kids, in general, tend to not understand social cues, and that her students, because of the severity of their autism, can't tell her their basic needs or thoughts.
她说,一般来说,自闭症孩子往往不理解社交暗示,而她的学生由于自闭症的严重程度,无法告诉她他们的基本需求或想法。
And so she finds she spends a lot of her work day trying to figure out what it is that they're thinking.
因此,她发现自己花了很多工作时间试图弄清楚他们在想什么。
And often, she's stumped.
很多时候,她都被难住了。
Sometimes you'll just see them looking off in the distance and laughing.
有时你只会看到他们眺望远方并大笑。
You think what are they laughing about?
你觉得他们在笑什么?
What's so funny?
有什么好笑的?
Or when we ask them to do certain things, like pass out the place mats or pass out the cups, what's going through their head process?
或者,当我们要求他们做某些事情时,例如分发餐垫或分发杯子,他们的大脑正在经历什么?
Like, OK, I'm supposed to do this and I don't-- or are they hearing just, murmur, murmur, verbiage, and not really understanding?
就像,好吧,我应该这样做,但我没有——或者他们只是听到嘀咕、嘀咕、废话,但并没有真正理解?
Or just listening to the tonalities of what we're saying?
或者只是听我们说话的语气?
Believe me, I've wanted to be inside their head just to know what they're thinking or feeling so many times.
相信我,我多次想进入他们的大脑,了解他们的想法或感受。
This question, of course, was part of our story in Act Two.
当然,这个问题是我们第二幕故事的一部分。
And it's at the heart of this next story.
这是下一个故事的核心。
It's at the center of what it means to deal with certain kinds of people with developmental disabilities.
它是处理某些类型的发育障碍人士的核心意义。
Veronica Chater's younger brother, Vincent, can't do math, even the simplest addition.
维罗妮卡·查特的弟弟文森特不会数学,甚至不会做最简单的加法。
He doesn't speak well.
他不太好说话。
He has a version of what used to be called mental retardation.
他有一种以前被称为精神发育迟滞的症状。
But, when he was a baby and doctors tried to diagnose him, they couldn't find anyone else with his particular combination of symptoms, and so they named his own syndrome after him: the Vincent syndrome.
但是,当他还是个婴儿时,医生试图诊断他,但他们找不到其他人具有他的特定症状组合,因此他们以他的名字命名了他自己的综合症:文森特综合症。
He's an adult now.
他现在已经是成年人了。
And for a while seemed to be doing just fine, until a point a few years ago when he surprised everybody in the family by quitting his job, and then quitting everything else in his life.
有一段时间,他似乎过得很好,直到几年前的某个时刻,他辞掉了工作,然后放弃了生活中的其他一切,让家里的每个人都感到惊讶。
And it was not clear to them why he did it and what it meant and what it would mean for his future.
他们不清楚他为什么这样做,这意味着什么,以及这对他的未来意味着什么。
Veronica Chater put together this story.
维罗妮卡·查特整理了这个故事。
Ever since Vincent quit his job, he spent more and more time alone in his room.
自从文森特辞掉工作后,他一个人呆在房间里的时间越来越多。
At Christmas, at our parent's house in northern California, my brothers and sisters and I weave in and out of the kitchen, talking about work, telling jokes, and taking orders from Mom.
圣诞节的时候,在加州北部父母的家里,我和兄弟姐妹在厨房里穿梭,谈论工作,讲笑话,接受妈妈的命令。
There are 11 of us.
我们有 11 个人。
I'm the second oldest.
我是第二大的。
Vinnie's the fifth.
维尼是第五个。
As usual, he's nowhere to be seen.
和往常一样,他不见踪影。
When I go down the hall, I find him in his bedroom with the door closed, drinking an orange soda from the can and watching an old movie.
当我穿过大厅时,我发现他在卧室里关着门,喝着罐装橙汁汽水,看着一部老电影。
[SOUND OF TELEVISION] His face is close to the TV screen, about 10 inches away.
[电视声音] 他的脸离电视屏幕很近,大约10英寸远。
And he has a serious expression, the kind you catch on a detective who's trying to crack a case.
他的表情很严肃,就像一个正在破案的侦探一样。
He could be 18 and he could be 50, you can't quite tell.
他可能是 18 岁,也可能是 50 岁,你不太清楚。
He has a short little boy haircut.
他留着小男孩的短发。
And, every day, he wears a sweatshirt with the words carpe diem on it.
而且,他每天都穿着一件印有“carpe diem”字样的运动衫。
The truth is, he's 34.
事实是,他已经34岁了。
Indeed.
确实如此。
Veronica Chater What did you get in your stocking?
维罗妮卡·查特 你的袜子里装了什么?
Some jamaroonies?
一些jamaroonies?
Vinnie still lives in his childhood bedroom, which he calls his apartment.
维尼仍然住在他儿时的卧室里,他称之为公寓。
Ever since he retired, bit by bit, he's been withdrawing into his own little world, a world that doesn't include me or anyone else.
自从他退休后,他就一点一点地退回到自己的小世界里,一个不包括我或其他任何人的世界。
OK, here we go.
好的,我们开始吧。
Cleaning up.
清理。
Veronica Chater My mom and dad still take care of Vinnie, but it's mainly my mom's job.
维罗妮卡·查特(Veronica Chater) 我的妈妈和爸爸仍然照顾维尼,但这主要是我妈妈的工作。
Clean it, clean you.
清洁它,清洁你。
Vincent's Mom Well, we'll shave you, shave you.
文森特的妈妈 好吧,我们给你刮胡子,给你刮胡子。
My parents, who are devout Roman Catholics, were undaunted by the idea of having a, so-called, special needs child.
我的父母是虔诚的罗马天主教徒,他们对于养一个所谓的特殊需要孩子的想法毫不畏惧。
They figured it was part of God's plan.
他们认为这是上帝计划的一部分。
He was an angel in our midst, as my dad always said.
正如我父亲常说的那样,他是我们中间的天使。
They refused to think of him as a burden, even though he would depend on them for the rest of their lives.
他们拒绝将他视为负担,尽管他将终生依赖他们。
Every morning, my mom readies him for the day: combing and gelling his hair, brushing his teeth, and shaving him.
每天早上,妈妈都会为他做好新的一天的准备:梳理头发、涂发胶、刷牙、刮胡子。
She tilts his chin this way and that, handling him like a barber with an overbooked schedule.
她这样那样地歪着他的下巴,就像对待一个日程排满的理发师一样对待他。
Done.
完毕。
All spiffed up for the day.
这一天一切都打扮得漂漂亮亮的。
OK, here.
好的,在这里。
Here we go.
开始了。
Vincent's Mom Put your shaver away, OK?
文森特的妈妈把你的剃须刀收起来,好吗?
There are all sorts of little games that Vinnie and my mom play together all day long.
维尼和我妈妈整天一起玩各种各样的小游戏。
Most of them are impenetrable to outsiders.
其中大多数对于外人来说是难以理解的。
He'll say, "Repeat.
他会说:“重复一遍。
Repeat." And she'll reply, "Redeep in the redeep." And they'll both giggle.
重复一遍。”她会回答说:“再深入再深入。”他们都会咯咯地笑。
OK, so I'm going to test you.
好吧,那我来测试一下你。
I want to see if you know any movies because you're always the one that knows movies.
我想看看你是否了解任何电影,因为你总是了解电影的人。
OK.
好的。
Who said this?
这句话是谁说的?
Who's the one that sucked his thumb and said, "Mommy"?
那个吸着大拇指说“妈妈”的人是谁?
The cartoon Robin Hood.
动画片罗宾汉。
Vincent's Mom Right.
文森特的妈妈 是的。
You got that one.
你得到了那个。
I didn't know if you were going to get that.
我不知道你是否会明白。
Despite his disability, Vinnie has a really good memory for all sorts of trivia.
尽管有残疾,维尼对各种琐事的记忆力都非常好。
Quizzing him about movies is the impromptu game my mom and dad play with him throughout the day, from morning till night.
问他关于电影的问题是我爸爸妈妈从早到晚和他一起玩的即兴游戏。
OK, I've got one for you, Vincent.
好的,我给你准备了一份,文森特。
See if you can get this one.
看看你能不能得到这个。
[SINGING] It was a Monday.
[唱歌] 那是一个星期一。
Ain't gonna soldier no more.
不会再当兵了
The bond between them is more than a bond, it's a union for life.
他们之间的联系不仅仅是一种联系,更是一生的结合。
As Vinnie passed through his teenage years and became an adult, Mom saw to it that he was kept busy.
当维尼度过了青少年时期并成为一个成年人时,妈妈让他保持忙碌。
She signed him up for bowling, for Special Olympics, and for pretty much every seasonal sport from basketball to badminton.
她为他报名参加保龄球、特殊奥运会以及从篮球到羽毛球的几乎所有季节性运动。
But as he got older, Vinnie's personality grew darker and more mysterious.
但随着年龄的增长,维尼的性格变得更加阴暗和神秘。
I didn't notice it right away.
我没有立即注意到它。
I don't think any of us did.
我想我们中没有人这么做过。
Mom was so good at keeping Vinnie distracted from himself that it didn't seem like a problem.
妈妈很擅长让维尼分散注意力,所以这看起来不是什么问题。
But two years ago, it grew too large to ignore.
但两年前,它变得太大而不容忽视。
Let's play games.
我们来玩游戏吧。
Vincent's Mom I'm not playing games right now.
文森特的妈妈 我现在不玩游戏。
Go get my sour cream.
去拿我的酸奶油。
Come on.
快点。
I want the sour cream.
我想要酸奶油。
I can't make those chantilly potatoes without it.
没有它我就做不了那些尚蒂伊土豆。
Every time I go home, it hits me a little bit more that, even though Vincent and I are about the same age, my mom talks to him like he's a precocious four-year-old.
每次我回家,我都会更震惊的是,尽管文森特和我年龄相仿,但我妈妈和他说话就像他是一个早熟的四岁孩子一样。
And, more and more, I've noticed that he's aware of it too.
而且,我越来越发现他也意识到了这一点。
When he returned without the sour cream and noticed that Mom and I were talking about him, he got upset.
当他回来时没有带酸奶油,并注意到妈妈和我正在谈论他,他很沮丧。
It is a wonderful reaction to talk about somebody?
谈论某人是一种很棒的反应吗?
When you talk about me, I wonder.
当你谈论我时,我想知道。
I talked right in front of you.
我就在你面前说话了。
I wasn't telling any secrets.
我没有透露任何秘密。
I'm going to say what I'm going to say because it's true.
我要说我要说的话,因为这是真的。
There's nothing wrong with having the truth, is there?
掌握真相并没有什么错,不是吗?
I'll put this away here-- Vincent's Mom You know, where it goes.
我会把这个放在这里——文森特的妈妈,你知道,它去了哪里。
Top shelf.
顶层架子。
The little slot, slide it in there.
小槽,滑进去。
Thank you, very much.
非常感谢。
No. Vincent's Mom He can go from one minute to-- oh, yeah.
不,文森特的妈妈他可以从一分钟到 - 哦,是的。
Dad's so afraid he's going to get him angry, he won't give him any orders.
爸爸很怕惹他生气,所以不给他任何命令。
I have to give all the orders.
我必须下达所有命令。
Yeah.
是的。
If he wants to get smart with me, and I say, "God said you have to obey your parents I'm your mother.
如果他想对我耍小聪明,我就会说:“上帝说你必须服从你的父母,我是你的母亲。
You do what I say, when I say.
当我说的时候,你就照我说的去做。
Da, da, da, da, da.
达,达,达,达,达。
Da, da, da, da." And he'll do something, sometimes I say, "You go in and you tell God you're sorry for that." He'll go in his room.
达、达、达、达。”他会做一些事情,有时我会说,“你进去告诉上帝你对此感到抱歉。”他会去他的房间。
And he comes out, "Sorry for talking like that." And I said, "That's fine, Vin.
然后他说:“抱歉这么说话。”我说:“没关系,文。
OK.
好的。
We just don't do that." Then he gets in a really good mood after that.
我们只是不这样做。”之后他的心情就变得非常好。
It might seem like my mom is rough on Vinnie, but I have to say that her way of dealing with him has pretty much worked out for the best, until the day Vinnie decided to retire.
我妈妈似乎对维尼很严厉,但我不得不说,她对待他的方式几乎是最好的,直到维尼决定退休的那一天。
When he quit his job, Vinnie dropped everything including bowling, basketball, and the Special Olympics.
辞职后,维尼放弃了一切,包括保龄球、篮球和特殊奥运会。
Where once he was busy from dawn till dusk, now he had nothing to do, so he began sleeping to pass the time, up to 18 hours a day.
曾经起早贪黑的他,现在无事可做,就开始睡觉来打发时间,每天长达18个小时。
It worried all of us, especially Mom.
这让我们所有人都很担心,尤其是妈妈。
He was sleeping his life away, and we didn't understand why.
他一直在睡觉,我们不明白为什么。
It felt like we were losing him, like he was giving up, so I set out to figure out why.
感觉就像我们正在失去他,就像他正在放弃,所以我开始找出原因。
If you ask Vinnie about why he quit his job, you don't get much of an answer.
如果你问维尼为什么辞职,你不会得到太多答案。
In general, it's hard to get a direct response out of him on any subject.
总的来说,很难从他那里得到关于任何话题的直接回应。
"Could be," he'll say, or, "Maybe." It's not clear he even knows what his own feelings are sometimes.
“可能是,”他会说,或者,“也许吧。”有时他甚至不清楚自己的感受是什么。
Often, when any of us asks him about his job, he'll just change the subject, like he did when I asked him about it, sitting in Mom's kitchen.
通常,当我们中的任何人问起他的工作时,他都会改变话题,就像我坐在妈妈的厨房里问他这件事时一样。
How come you don't just tell me why you quit?
你为什么不直接告诉我你辞职的原因?
But seriously, it might be empty, blank there, after you were saying something.
但说真的,在你说了些什么之后,它可能是空的、空白的。
You mean you're leaving that section blank because you don't want to fill it in with words?
您的意思是您将该部分留空,因为您不想用文字填充它?
No. Veronica Chater We've all asked Vinnie dozens of times in dozens of different ways why he quit his job and everything else.
不。维罗妮卡·查特(Veronica Chater) 我们都用几十种不同的方式问过维尼几十次为什么他辞去了工作和其他一切。
And every time his answer is just as cryptic, and so we're all forced to guess what the real reasons are.
每次他的回答都同样神秘,所以我们都被迫猜测真正的原因是什么。
My mom's best guess is that Vinnie put himself into early retirement and started all these dark moods because of a chemical change in his brain.
我妈妈的最佳猜测是,维尼提前退休并开始了所有这些黑暗的情绪,因为他的大脑发生了化学变化。
The psychologist said he thinks there was a chemical imbalance that took place, suddenly, in his brain.
心理学家说,他认为他的大脑中突然发生了化学失衡。
And he prescribed Prozac for him.
他给他开了百忧解。
Well, it's all chemical.
好吧,这都是化学的。
Vincent's Mom I don't know.
文森特的妈妈我不知道。
It's really a mystery to me what happened there.
那里发生的事情对我来说确实是一个谜。
Vinnie had worked for 12 years at a place called Concord Support Services, a company that hires mentally retarded adults and vocationally trains them.
维尼曾在一家名为 Concord Support Services 的公司工作了 12 年,这家公司雇用智障成年人并对他们进行职业培训。
Vinnie always told me that he liked his job.
维尼总是告诉我他喜欢他的工作。
He'd sit in a big warehouse with about 70 other disabled adults doing light assembly or stuffing envelopes.
他会和其他大约 70 名残疾成年人坐在一个大仓库里,进行轻型组装或填充信封。
He made up to $60 a month, which, to him, was an infinite amount of money.
他每个月赚到 60 美元,这对他来说是无穷无尽的钱。
We all assumed he'd found his place in the world.
我们都以为他已经在世界上找到了自己的位置。
Then, gradually, he started to become impatient and angry at work, threatening to break people's fingers if they touched him.
然后,渐渐地,他开始在工作中变得不耐烦和愤怒,威胁说如果别人碰他,他就折断手指。
He started disappearing into the work bathroom for up to an hour at a time just to get away from people.
他开始一次消失在工作卫生间长达一个小时,只是为了远离人群。
It was pretty clear that he was in a crisis.
很明显,他正处于危机之中。
On his last day, he was wandering around looking for a bead he'd dropped.
在他的最后一天,他四处闲逛,寻找他掉下的珠子。
His supervisor asked him what he was doing.
他的主管问他在做什么。
One thing led to another.
一件事导致了另一件事。
Vinnie lost his temper.
维尼发脾气了。
My parents were called in for a meeting.
我的父母被叫去开会。
And Vinnie quit, just up and walked out.
维尼放弃了,只是起身走了出去。
A few months ago, I asked Vinnie if he'd like to go back to his old job for a visit hoping it might spark something.
几个月前,我问维尼是否愿意回到原来的工作岗位去拜访,希望能激发一些灵感。
I wasn't sure how he'd react, but he didn't even hesitate.
我不知道他会作何反应,但他没有犹豫。
He told me that he'd love to go.
他告诉我他很想去。
So the next morning, after my mom spiffed him up, we drove the route he'd taken for 12 years.
第二天早上,在我妈妈把他打扮得漂漂亮亮之后,我们就沿着他走了 12 年的路线行驶。
When we arrived at the front doors, he's all smiles.
当我们到达前门时,他满脸笑容。
He seems genuinely glad to be there.
他似乎真的很高兴能在那里。
You do?
你做?
Nice to see you.
很高兴见到你。
Veronica Chater But, as we approach the warehouse floor where Vinnie used to work, his pace slows.
维罗妮卡·查特 但是,当我们接近维尼曾经工作过的仓库楼层时,他的脚步放慢了。
At the warehouse door, he hesitates and purses his lips together.
到了仓库门口,他犹豫了一下,抿紧了嘴唇。
Wonderful.
精彩的。
Hi.
你好。
Nice to see you [?
很高兴见到你[?
Jane.
简.
?]
?]
Nice seeing you.
很高兴见到你。
Veronica Chater He becomes shy and looks confused as one person after another comes up to him.
当一个又一个的人向他走来时,他变得害羞并且看起来很困惑。
Some touch him fondly, one man blows in his face, and everyone stares.
有些人深情地抚摸他,一个人朝他的脸吹气,每个人都盯着他。
Vinnie tries to appear cool, but I can tell he's tense.
维尼试图表现得冷静,但我看得出来他很紧张。
We miss you, Vinnie.
我们想念你,维尼。
We miss the Vinnie Arnold we knew.
我们想念我们认识的维尼·阿诺德。
We missed you, Vinnie.
我们想念你,维尼。
We missed you.
我们想念你。
Would you like to begin basketball practice Saturday?
你想周六开始篮球训练吗?
I don't know.
我不知道。
I'm not into-- I'm back into bowling and running again.
我不喜欢——我又开始打保龄球和跑步了。
We hang out.
我们出去玩。
And Vinnie looks uncomfortable, except when he decides, on his own, to busy himself cleaning and straightening.
维尼看起来很不舒服,除非他自己决定忙着清理和整理。
After 15 minutes, he disappears into the bathroom, his old hiding place.
15 分钟后,他消失在浴室里,那是他以前的藏身之处。
After a while, he comes out for a few minutes, then goes back in, and then comes back out again.
过了一会儿,他出来几分钟,然后又进去,然后又出来。
When he heads back into the bathroom for the third time, I know it's time to leave.
当他第三次回到浴室时,我知道是时候离开了。
Later, I talked to my brother, Danny, about it.
后来,我和我哥哥丹尼谈了这件事。
Of all my siblings, Danny spends the most time with Vinnie.
在我所有的兄弟姐妹中,丹尼和维尼在一起的时间最多。
They go to movies, take walks, go to bookstores.
他们去看电影、散步、去书店。
Danny thinks Vinnie might have quit his job for all the normal reasons any of us quit a job.
丹尼认为维尼可能会因为我们每个人辞职的所有正常原因而辞职。
Maybe it had nothing to do with his disability.
也许这与他的残疾无关。
I think he was probably extremely bored working in this place, doing the same thing over and over again: stuffing envelopes, putting paper clips in bags.
我想他在这个地方工作可能非常无聊,一遍又一遍地做同样的事情:塞信封,把回形针放进袋子里。
There was no challenge to it, and I think it really frustrated him.
没有任何挑战,我认为这确实让他感到沮丧。
Vinnie might have simply had enough, enough of other people controlling his life.
维尼可能已经受够了其他人控制他的生活。
All the adults in his life were doing the sensible things you do for disabled people: giving structure to his days, coaxing his moods, all with the best intentions.
他生命中所有的成年人都在做为残疾人所做的明智的事情:安排他的生活,哄骗他的情绪,所有这些都是出于最好的意图。
It's possible that, in the end, that wasn't enough of a life.
到最后,这可能还不够。
And so, one day, he changed the one thing in his life that he could.
于是,有一天,他改变了生命中他力所能及的一件事。
He said no to the one thing he could say no to and quit his job, and then quit everything else.
他拒绝了一件他可以拒绝的事情并辞掉了工作,然后辞掉了其他一切。
Being told what to do constantly, day in, and day out.
日复一日地不断被告知要做什么。
And then he watches his other brothers and sisters running around and traveling and having their freedom, and here he is, stuck at home in his room.
然后他看着其他兄弟姐妹四处奔走、旅行并获得自由,而他却被困在家里的房间里。
I can just imagine how frustrating that would be.
我可以想象那将是多么令人沮丧。
It would make me angry if I was in that situation.
如果我处于那种情况,我会很生气。
After Vinnie retired, my mom and dad were determined to get him back into some kind of routine.
维尼退休后,我的妈妈和爸爸决心让他恢复某种日常生活。
After meeting with all sorts of social workers and suggesting dozens of ideas to Vinnie, they finally came up with something that he agreed to.
在与各种社会工作者会面并向维尼提出了数十个想法后,他们终于想出了一个他同意的东西。
They hired my brother, Bernard, to build a chicken coop in the backyard and to put Vinnie in charge of a miniature chicken farm.
他们雇佣了我的兄弟伯纳德在后院建了一个鸡舍,并让维尼负责一个微型养鸡场。
My mom had always wanted a chicken farm anyway.
无论如何,我妈妈一直想要一个养鸡场。
This was her big chance to get one.
这是她获得这一机会的绝佳机会。
Vinnie took to every aspect of chicken farming.
维尼关注养鸡业的方方面面。
He was painstakingly mindful of the chicken's daily schedule of free-range feeding and lock-up.
他煞费苦心地留意着鸡每天的放养和圈养时间表。
And he was especially fastidious about coop hygiene.
他对鸡舍的卫生特别挑剔。
But more than that, to everyone's surprise, he started participating in activities again.
但更重要的是,令所有人惊讶的是,他又开始参加活动了。
He started basketball practice.
他开始了篮球训练。
And he's training again for the Special Olympics.
他正在再次为特殊奥运会进行训练。
Molly, Polly, Jeanette, and Lonnie, here.
莫莉、波莉、珍妮特和朗尼,在这里。
[CHICKEN CACKLE] Veronica Chater Pretty much at any time of the day, you can see Vinnie standing as still as a marble sculpture in the backyard beside the coop, his eyes half closed, and his palms cupping the breeze, thinking, or just listening to the sound of his hens.
[鸡叫声] 维罗妮卡·查特 几乎在一天中的任何时候,你都可以看到维尼一动不动地站在后院鸡舍旁边的大理石雕塑上,他的眼睛半闭着,手掌捧着微风,思考着,或者只是听着母鸡的叫声。
He named them after old friends and talks to them like children.
他以老朋友的名字为他们命名,并像孩子一样与他们交谈。
[CHICKEN CACKLE] Vincent Molly, Polly, Jeanette and Lonnie.
[炸鸡] 文森特·莫莉、波莉、珍妮特和朗尼。
[CHICKEN CACKLES] Ira Glass Veronica Chater lives in Berkeley, California.
[鸡肉炸鸡] Ira Glass Veronica Chater 住在加利福尼亚州伯克利。
She has a memoir coming out about her family next spring called, Waiting for the Apocalypse .
明年春天,她将出版一本关于她家人的回忆录,名为《等待世界末日》。
[MUSIC - "9 TO 5" BY HAMMOND STATE SCHOOL PERFORMING GROUP]
[音乐 - 哈蒙德州立学校表演团的《朝九晚五》]
This cover of 9 to 5 was recorded in 1985.
这张翻唱的《朝九晚五》录制于 1985 年。
It's the Hammond State School Performing Group in Louisiana.
这是路易斯安那州哈蒙德州立学校表演团。
They are developmentally disabled kids in a music therapy program.
他们是音乐治疗项目中患有发育障碍的孩子。
Our show today was produced by Jonathan Goldstein and myself with Alex Blumberg, Wendy Dorr and Starlee Kine.
我们今天的节目由乔纳森·戈德斯坦和我本人以及亚历克斯·布隆伯格、温迪·多尔和斯塔莉·凯恩共同制作。
Senior Producer is Julie Snyder.
高级制片人是朱莉·斯奈德。
Production help from Todd Bachmann and Maria Schell.
托德·巴赫曼 (Todd Bachmann) 和玛丽亚·谢尔 (Maria Schell) 为制作提供帮助。
[ACKNOWLEDGEMENTS] Our website, www.thisamericanlife.org, where you can get our free weekly podcast or listen to old shows online, for free.
[鸣谢] 我们的网站 www.thisamericanlife.org,您可以在其中免费获取我们的每周免费播客或在线收听老节目。
This American Life is distributed by Public Radio International.
《美国生活》由国际公共广播电台发行。
[FUNDING CREDITS] WBEZ management oversight for our program by Mr. Torey Malatia, who has this message for America.
[资金来源] Torey Malatia 先生对我们的项目进行 WBEZ 管理监督,他向美国传达了这一信息。
God bless your life.
愿上帝保佑你的生活。
Watch The New Love Boat.
播放“新爱情之船”。
I'm Ira Glass.
我是艾拉·格拉斯。
Back next week with more stories of This American Life.
下周我们将带来更多《美国生活》的故事。
This American Life is produced in collaboration with WBEZ Chicago and delivered to stations by PRX The Public Radio Exchange.
《This American Life》与 WBEZ Chicago 合作制作,并由 PRX 公共广播电台传送到各电台。